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The Patient Advocate Foundation’s ALS Medicare Resource Line provides navigational assistance with financial and practical challenges that impact your ability to access healthcare. Whether you need help to understand coverage options, find resources for financial aid, resolve issues with your insurance company, or apply/appeal for disability, we are here to support you.

Are You Eligible?

To receive our Case Management services, a patient must:

  • Have a confirmed diagnosis of amyotrophic lateral sclerosis (ALS), also called motor neuron disease (MND) and Lou Gehrig’s disease. Or the patient must be getting testing for the condition.
  • Be in active treatment for the health condition or starting treatment in the next 60 days. Or the patient must have finished treatment in the last 6 months.
  • Be a U.S. citizen or a permanent resident of the United States.
  • Be getting treatment in the United State or a U.S. territory.
  • Have a support need around financial assistance, health or disability insurance navigation, workplace benefits and entitlements, or access to care. Click here for a full list of services.

If all of these are true for you, for a family member or for your patient and you’d like our help, connect now with a PAF Case Manager.

Connect with a Case Manager!

We need some quick details about you so we can match you with the right Case Manager. To get started, you can:

We’re here for you:
Monday to Friday
8:30 AM to 5:00 PM Eastern Time

We’re closed for major holidays.

Our Partners

The ALS Medicare Resource Line is operated by Patient Advocate Foundation (PAF) in partnership with ALS Association. This program is part of the MedCareLine Case Management division, an extension of PAF Case Management that focuses on certain health conditions, treatments , or groups of people.

About Patient Advocate Foundation

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides professional case management services to patients with chronic, life threatening and debilitating diseases.

Established in 1996, Patient Advocate Foundation assists patients who have been diagnosed with serious illness overcome healthcare access barriers. PAF provides in-depth assistance through personalized case management, financial support, and connection to critical community resources.  PAF serves uninsured and insured patients across the country at no charge to help overcome and resolve insurance-related and financial obstacles that impact care.

Patient Advocate Foundation has been consecutively recognized as a 4-star charity by Charity Navigator, the country’s premier independent charity evaluator. For more information about Patient Advocate Foundation visit www.patientadvocate.org.

About ALS Association

Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.

As the preeminent ALS organization, The Association leads the way in research, care services, public education, and public policy — giving help and hope to those facing the disease.  The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Download our full mission toolkit.

Services

Welcome to PAF’s Case Management Program!

In this brief video we will share important details about PAF case management services including who we help, what we do, a few things PAF can’t do, and how we can serve you best! The goal of our case management support is to reduce the practical and financial burden for patients so they can focus on getting better.

At Patient Advocate Foundation, we know that living with ALS can be overwhelming. It can complicate daily life and cause extreme stress for patients and families.

We can help patients with:

Access to care

  • Getting prescribed medical treatment and services
  • Understanding what your health insurance covers and your options if you don’t have insurance

Paying for treatment

  • Getting approvals and payments from health insurance
  • Appealing insurance denials
  • Applying to insurance programs, like Medicaid, Medicare, and the Health Insurance Marketplace
  • Applying to programs that help pay for co-pays and insurance premiums
  • Applying for free or low-cost healthcare and medicine programs
  • Getting discounts or setting up payment plans

Paying for living expenses

  • Applying for programs that can help pay for things like food, rent, utilities, and transportation
  • Applying for Social Security Disability Insurance (SSDI)

Employment

  • Helping you use your employee benefits, like health insurance and sick leave
  • Understanding laws like the Americans with Disabilities Act (ADA) and the Family and Medical Leave Act (FMLA)
  • Applying for disability insurance to help with income if you can’t work; and helping you challenge disability denials, if needed

You can reach the ALS Medicare Resource Line team by calling (844) 224-1306