Category: Uncategorized

Program Disclaimer

PAF’s ALS Medicare Resource Line provides one-on-one assistance with a professional case manager to help qualified patients and caregivers resolve financial, job-related, and healthcare access issues that may be the result of a patient’s Amyotrophic lateral sclerosis (ALS) diagnosis. In order to qualify for case management assistance, the patient must have ALS, also known as motor neurone disease (MND) or Lou Gehrig’s Disease and must be receiving active treatment for the disease, must have received treatment for the disease within the last six (6) months, or will begin treatment in the next 60 days. PAF’s ALS Medicare Resource Line provides assistance with resolving a broad variety of patient and caregiver concerns including: (1) access to care (e.g., assistance in obtaining prior authorization approvals; second opinions, insurance appeals; insurance plan review); (2) cost of care (e.g., co-pay assistance, premium assistance); (3) cost of living expenses (e.g., rent, utility, transportation, food/nutrition assistance programs);(4) safety net program support (e.g. SSDI, LIS, Extra Help enrollment assistance) and (5) employment-related issues (e.g., FMLA, short-term and long-term disability). PAF’s ALS Medicare Resource Line identifies sources of assistance, including other charitable organizations and government-sponsored programs, and assists patients in enrolling in these services as appropriate.

PAF will not consider the identity of any physician, provider, supplier of items or services, donor, drug therapy, services or supplies being utilized, or the referral source when assessing whether an applicant is qualified for assistance through PAF’s ALS Medicare Resource Line. Further, assistance through the ALS Medicare Resource Line is not dependent on the use of a particular drug, particular supplies, or particular provider or suppliers and patients are free to switch drug therapies, treating physicians, pharmacies, and suppliers at any time without affecting their continued eligibility for assistance from PAF.

Qualifying patients are provided one-on-one assistance by PAF’s ALS Medicare Resource Line until their access to care, cost of care, cost of living, or employment-related issues are resolved. Assistance is provided to the extent the ALS Medicare Resource Line has capacity to provide assistance with no preference being given to patients from any one referral source.

Patients’ contact information may be used in the future to share printed and/or electronic communications from Patient Advocate Foundation and the PAF Case Management program (including the ALS Resource Line). If the patient does not wish to receive print and/or electronic communications from PAF, he/she may contact the program at (1-844-244-1306) and request to have his/her contact information removed from the mailing list.

Patients’ data may also be used in de-identified aggregated reports. This means that information patients provide to the ALS Medicare Resource Line may be combined with other patients’ data to prepare reports analyzing patient needs and the ALS Medicare Resource Line. PAF will only use de-identified patient data, i.e., patient data where all identifying data terms like the patient’s name, identifying numbers, etc. have been removed.

Our Partners

The ALS Medicare Resource Line is operated by Patient Advocate Foundation in partnership with the ALS Association with a goal of better meeting the needs of patients receiving or seeking care for ALS. The staff work alongside patients, their caregivers and ALS Chapter staff providing personalized help to remove insurance and financial access barriers in an effort to improve outcomes to residents of the United States. The ALS Medicare Resource Line is part of the MedCareLine division operated by Patient Advocate Foundation.

About Patient Advocate Foundation

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides professional case management services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor.

Established in 1996, Patient Advocate Foundation assists patients who have been diagnosed with serious illness overcome healthcare access barriers. PAF provides in-depth assistance through personalized case management, financial support, and connection to critical community resources.  PAF serves uninsured and insured patients all across the country at no charge to help overcome and resolve insurance-related and financial obstacles that impact care.

Patient Advocate Foundation has been consecutively recognized as a 4 star charity by Charity Navigator, the country’s premier independent charity evaluator. For more information about Patient Advocate Foundation and their full mission to improve health access to all patients, visit www.patientadvocate.org .

About ALS Association

Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.

As the preeminent ALS organization, The Association leads the way in research, care services, public education, and public policy — giving help and hope to those facing the disease.  The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Download our full mission toolkit.

Services

Helping patients overcome practical, emotional, social and financial barriers faced by people

Case management services provide hands-on navigation of the reimbursement system, ensuring access to prescribed and emerging therapies and treatment and the practical financial support needs and often addressing the holistic needs of the patient, recognizing that everyday barriers often impact access and compliance.  Education, research, and representation across a wide spectrum of services are provided for uninsured, underinsured, and insured patients.

At no cost to you, PAF case managers are here to help address any roadblocks to access and affordability:

Reduce Financial Burden

  • Find local, regional and national resources for financial support and for practical needs such as housing, utilities, transportation, and food
  • Educational and emotional support resources
  • Guide patients through eligible workplace protections such as FMLA and ADA
  • Give assistance engaging, applying and appealing workplace benefits including short-term and long-term disability

Enroll into Appropriate Programs

  • Provide eligibility, enrollment and appeal navigation into Medicare
  • Evaluate eligibility and facilitate application to charity care and discount programs

All services are provided at no charge to the patient. All services are provided through phone and/or email communication.