Category: Uncategorized

Contact Us

The Patient Advocate Foundation’s ALS Insurance and Benefits Resource Line provides free, direct telephone access to case managers who can help with navigating health insurance, disability, and financial hardships that impact access to care.

Connect with a Case Manager!

For assistance, individuals can call 1-844-244-1306, or complete a request for help form.

We’re here for you:
Monday to Friday
8:30 AM to 5:00 PM Eastern Time

We’re closed for major holidays.

Our Partners

The ALS Association partners with the Patient Advocate Foundation (PAF) a national 501(c)(3) non-profit organization to provide The ALS Insurance and Benefits Resource Line, a source designed to provide individualized case management assistance for people living with ALS, their family members and caregivers.

About Patient Advocate Foundation

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides professional case management services to patients with chronic, life threatening and debilitating diseases.

Established in 1996, Patient Advocate Foundation assists patients who have been diagnosed with serious illness overcome healthcare access barriers. PAF provides in-depth assistance through personalized case management, financial support, and connection to critical community resources.  PAF serves uninsured and insured patients across the country at no charge to help overcome and resolve insurance-related and financial obstacles that impact care.

Patient Advocate Foundation has been consecutively recognized as a 4-star charity by Charity Navigator, the country’s premier independent charity evaluator. For more information about Patient Advocate Foundation visit www.patientadvocate.org.

About ALS Association

Established in 1985, The ALS Association is the only national non-profit organization fighting ALS on every front.  By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.

As the preeminent ALS organization, The Association leads the way in research, care services, public education, and public policy — giving help and hope to those facing the disease.  The Association’s nationwide network of chapters provides comprehensive patient services and support to the ALS community. The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Download our full mission toolkit.

Services

Choosing insurance is a big decision and should be considered carefully based on your unique medical needs. The ALS Association partners with the Patient Advocate Foundation (PAF) to provide The ALS Insurance and Benefits Resource Line, a source designed to provide individualized case management assistance for people living with ALS, their family members and caregivers.

The program offers free, direct telephone access to case managers who can help with navigating health insurance, disability, and financial hardships that impact access to care.

We can help with:

Health Insurance Navigation

  • Check Eligibility and Apply: Determine health insurance options and help with applications and enrollments.
  • Understand Benefits: Assist in understanding insurance benefits and potential out-of-pocket costs.
  • Appeal Help: Receive help with insurance denials.
  • Ensure Accurate Billing: Identify, correct errors, and verify if insurance made payments on medical bills.

Disability Navigation:

  • Check Eligibility and Apply: Determine if you qualify for disability benefits and get help with applications.
  • Appeal Help: Receive help with appeals if your disability claim is denied.

Support for Financial Hardships:

  • Check Eligibility and Apply: Explore external resources to reduce medical costs and everyday expenses, helping with the application paperwork.
  • Negotiate Medical Debt Solutions: Find solutions with creditors for managing medical debt, such as extending payment deadlines, arranging payment plans, securing discounts, or accessing charity.

Are You Eligible?:
To receive our Case Management Services, a patient must:

  • Have a confirmed diagnosis of amyotrophic lateral sclerosis (ALS), also called motor neuron disease (MND) and Lou Gehrig’s disease. Or the patient must be getting tested for the condition.
  • U.S. resident or residing in its territories and receiving treatment in U.S.
  • A need that is directly related to a current diagnosis or screening of ALS and is aligned with case management program criteria.