PAF’s ALS Medicare Resource Line provides one-on-one assistance with a professional case manager to help qualified patients and caregivers resolve financial, job-related, and healthcare access issues that may be the result of a patient’s Amyotrophic lateral sclerosis (ALS) diagnosis. In order to qualify for case management assistance, the patient must have ALS, also known as motor neurone disease (MND) or Lou Gehrig’s Disease and must be receiving active treatment for the disease, must have received treatment for the disease within the last six (6) months, or will begin treatment in the next 60 days. PAF’s ALS Medicare Resource Line provides assistance with resolving a broad variety of patient and caregiver concerns including: (1) access to care (e.g., assistance in obtaining prior authorization approvals; second opinions, insurance appeals; insurance plan review); (2) cost of care (e.g., co-pay assistance, premium assistance); (3) cost of living expenses (e.g., rent, utility, transportation, food/nutrition assistance programs);(4) safety net program support (e.g. SSDI, LIS, Extra Help enrollment assistance) and (5) employment-related issues (e.g., FMLA, short-term and long-term disability). PAF’s ALS Medicare Resource Line identifies sources of assistance, including other charitable organizations and government-sponsored programs, and assists patients in enrolling in these services as appropriate.
PAF will not consider the identity of any physician, provider, supplier of items or services, donor, drug therapy, services or supplies being utilized, or the referral source when assessing whether an applicant is qualified for assistance through PAF’s ALS Medicare Resource Line. Further, assistance through the ALS Medicare Resource Line is not dependent on the use of a particular drug, particular supplies, or particular provider or suppliers and patients are free to switch drug therapies, treating physicians, pharmacies, and suppliers at any time without affecting their continued eligibility for assistance from PAF.
Qualifying patients are provided one-on-one assistance by PAF’s ALS Medicare Resource Line until their access to care, cost of care, cost of living, or employment-related issues are resolved. Assistance is provided to the extent the ALS Medicare Resource Line has capacity to provide assistance with no preference being given to patients from any one referral source.
Patients’ contact information may be used in the future to share printed and/or electronic communications from Patient Advocate Foundation and the PAF Case Management program (including the ALS Resource Line). If the patient does not wish to receive print and/or electronic communications from PAF, he/she may contact the program at (1-844-244-1306) and request to have his/her contact information removed from the mailing list.
Patients’ data may also be used in de-identified aggregated reports. This means that information patients provide to the ALS Medicare Resource Line may be combined with other patients’ data to prepare reports analyzing patient needs and the ALS Medicare Resource Line. PAF will only use de-identified patient data, i.e., patient data where all identifying data terms like the patient’s name, identifying numbers, etc. have been removed.